Patient Resources & Links

This is a partial listing of reliable online sources of general cancer information relating to prevention, early detection, treatments, symptom management, and support options. Our team of physicians and nurses are an excellent resource for local community information.

American Cancer Society
Publications on treatment and patient care; support groups. Wigs are available through the local office.
www.cancer.org

People Living With Cancer
Provides information on over 50 types of cancer and their treatments. Designed to help people with cancer make informed health-care decisions.
www.peoplelivingwithcancer.org

American Brain Tumor Association
Offers free publications on brain tumors, support groups, referrals, pen pal program and funds research.
www.abta.org

American Lung Association
Dedicated to preventing lung disease and promoting lung health.
www.lungusa.org

Blood & Marrow Transplant Newsletter
Publications; attorney referrals for patients with insurance problems; links patients with survivors for emotional support.
www.bmtnews.org

BMT Family Support Network
Links patients with survivors for emotional support. Call 1-800-826-9376 for information.

Cancer Hope Network
Information on support groups and networks.
cancerhopenetwork.org

Cancer Research Institute
Information on cancer research.
www.cancerresearch.org

Cancer Resource Center
Local (Lincoln, Nebr.) resource center; access to research trials.
www.lmef.org/crc.htm

Candlelighters Childhood Cancer Foundation
Network of support groups for children, parents and caregivers; publications.
www.candlelighters.org

Family and Medical Leave Act
Provides information on the Family and Medical Leave Act; forms.
www.dol.gov/esa/fmla.htm

The Leukemia & Lymphoma Society
News, links, and services related to fighting cancers of the blood.
www.lls.org

Lymphoma Research Foundation
Funds research grants for lymphoma; provides educational materials, support group and networking information; newsletter.
www.lymphoma.org

Make Today Count
A mutual support organization that brings together persons affected by a life-threatening illness. Call 1-800-432-2273 for more information.

National Cancer Institute (NCI)
Information on current cancer treatment and clinical trials.
cancernet.nci.nih.gov

National Coalition on Cancer Survivorship (NCCS)
Publications; referrals; national advocate on rights of cancer patients and survivors. Call 1-888-650-9127 for more information.

National Hospice and Palliative Care Organization
Information and publications regarding hospice care. Online list of local hospices, reimbursements and basic hospice information.
www.nhpco.org

National Lymphedema Network, Inc.
Publishes quarterly newsletter and provides referrals.
www.lymphnet.org

National Marrow Donor Program
Transplant center director; publication on donor searches, recruitment and being a volunteer.
www.marrow.org

National Organization for Rare Disorders (NORD)
A unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them.
www.raredisorders.org

National Ovarian Cancer Coalition
Promotes education regarding all the facts, issues and problems surrounding ovarian cancer.
www.ovarian.org

Oncolink
www.oncolink.upenn.edu

Support for People with Oral, Head and Neck Cancer, Inc. (SPOHNC)
Self-help program of support for those dealing with head and neck cancer.
www.spohnc.org

Susan B. Komen Breast Cancer Foundation
Sponsor of “Race for the Cure” events; funds national breast cancer research, project grants and local education, screening and treatment projects.
www.breastcancerinfo.com

The Skin Cancer Foundation
Provides education and resource materials.
www.skincancer.org

US TOO International, Inc.
Provides prostate cancer survivors with emotional and educational support through a network of support groups and quarterly newsletters.
www.ustoo.com

Patient Advocate Foundation Co-Pay Relief Program (CPR)
Provides pharmaceutical co-payment assistance to qualifying patients with brain, breast, lung, kidney, colon, pancreatic, prostate, or head and neck cancers, lymphoma, sarcoma, and some secondary issues as a result of chemotherapy treatment. Patients must qualify medically and financially to access co-payment assistance. To initiate a request for assistance, call toll free 1-866-512-3861. Additional information is available at the websites listed below.
www.copays.org
www.patientadvocate.org

Association of Cancer Online Resources

Chemocare.com

National Cancer Institute

National Coalition of Cancer Survivorship

American Society of Clinical Oncology

Association of Community Cancer Centers

National Coalition for Cancer Survivorship

Oncology Nursing Society

Prostate Cancer Foundation

Colon Cancer Alliance

International Myeloma Foundation

Leukemia and Lymphoma Society

Lymphoma Information Network

Lymphoma Research Foundation of America

Multiple Myeloma Research Foundation

National Prostate Cancer Coalition

Support for People with Oral and Head and Neck Cancer

Susan G. Komen Breast Cancer Foundation

Women’s Cancer Network

Y-ME National Breast Cancer Organization

Hematology & Oncology Associates of RI ~ Provided by New Bedford Internet